She got the flu when she was 18 months old and had a life of seizures and pain. Eventually she was diagnosed with Dravet Syndrome, a severe epilepsy.
She lost her ability to speak and walk. She never slept more than two hours at a time.
“Before medical cannabis, we spent most days at home. But Amelia likes to travel and experience new things,” her mother said in a LeafLine Labs (the company authorized to provide cannabis) story.. “We went to a water park, which we would never have attempted before. We’ve been to Seattle, and Amelia has been to the top of the Space Needle. She’s able to have a life. She’s able to go watch her sister in her activities and be a part of our community.”
But she was airlifted and admitted to the Mayo Clinic on Sunday night and died yesterday, her family reports.
Warrior Amelia after a lifelong battle with Scn2a passed away today. We did not take one single moment with our Amelia…
Her story is memorialized in the Bakken Museum’s exhibit on plants as medicine.