Hibbing girl, 12, a face of the medical marijuana debate, dies

Amelia Weaver, one of the faces of Minnesota’s debate over the legalization of medical marijuana, has died.

She got the flu when she was 18 months old and had a life of seizures and pain. Eventually she was diagnosed with Dravet Syndrome, a severe epilepsy.

She lost her ability to speak and walk. She never slept more than two hours at a time.

Her mother, Angie, of Hibbing, testified before the Legislature during the debate over marijuana legalization and after it became legal, Amelia improved, the Duluth News Tribune reported at the time.

“Before medical cannabis, we spent most days at home. But Amelia likes to travel and experience new things,” her mother said in a LeafLine Labs (the company authorized to provide cannabis) story.. “We went to a water park, which we would never have attempted before. We’ve been to Seattle, and Amelia has been to the top of the Space Needle. She’s able to have a life. She’s able to go watch her sister in her activities and be a part of our community.”

But she was airlifted and admitted to the Mayo Clinic on Sunday night and died yesterday, her family reports.

Warrior Amelia after a lifelong battle with Scn2a passed away today. We did not take one single moment with our Amelia…

Posted by Fighting For Amelia on Thursday, August 16, 2018

Her story is memorialized in the Bakken Museum’s exhibit on plants as medicine.

  • Erik Petersen

    Medical use legalization is here, to a point…. but this is why I’m voting for Walz, as a historically somewhat crank / crabby conservative.

    Walz statement on marijuana legalization is unambiguous and non-prudish.

    • Be careful on this, everyone. I’m going to be really focused on not letting the thread drift to a broader discussion of marijuana legalization.

      • Kassie

        Can you have this conversation without the broader conversation about legalization? The current cost of medical marijuana, which is not covered by insurance, is extraordinary. The only way for people to get the medicine they need at a reasonable price is broad legalization.

        • Rob

          Amen. Plus, MN’s med marijuana law prohibits production, prescription and patient use of directly smokable weed. Since less processing and production is involved, I’d assume that directly smokable weed would be less expensive for patients under either medical use only laws or under total legalization.

        • Jim in RF

          Exactly. And the #1, 2 and 3 reasons legislators (and Dayton) push back is law enforcement.

  • Barton

    I am glad that she was able to get relief from her disease before she died. It sounds like she and her family were able to enjoy quite a few things. My sincere condolences to her family.