As most fans of NPR’s Morning Edition know, Friday is the day you get to cry on your way to work.
StoryCorps, the segment in which people tell their life story in their own words, is always good for a punch to the feels; this morning’s outdid its usual compelling self.
It’s the story of Aidan Jack Seeger, who died of adrenoleukodystrophy (ALD) in 2012. He was just 7.
Last year, New York became the first state in the country to screen newborns for the genetic disorder that rapidly attacks the nervous system. It mostly affects young boys and kills them within a year. A bone marrow transplant can help them survive.
Listen in. Here’s a tissue.
Listen Story Corps: Aidan’s Story
April 4, 2014
Related: Information about newborn screening in Minnesota.
About the blogger
Bob Collins has been with Minnesota Public Radio since 1992, emigrating to Minnesota from Massachusetts. He was senior editor of news in the ’90s, ran MPR’s political unit, created the MPR News regional website, invented the popular Select A Candidate, started the two most popular blogs in the history of MPR and every day laments that his Minnesota Fantasy Legislature project never caught on.
NewsCut is a blog featuring observations about the news. It provides a forum for an online discussion and debate about events that might not typically make the front page. NewsCut posts are not news stories but reflections , observations, and debate.